Showing posts with label therapy. Show all posts
Showing posts with label therapy. Show all posts

Monday, April 19, 2010

Ignorance is not bliss

When the diagnosis came down the pipe and we got the brand-new shiny label stuck on our child's forehead we went looking for answers to the squillions of questions that were rampaging through our minds.
I don't think I stopped reading or researching once we'd got our heads around the meaning behind the label; books and news articles were recommended from friends and chased up, diets and vitamin supplements researched then discussed with doctors, biographies and autobiographies read and discussed at length.
Heck, I even (briefly) researched freakazoid Bettelheim and his 'refrigerator mother' concept just to have information to fight the ignorance still lingering today which is his destructive legacy to those on the Spectrum.

Thursday, April 15, 2010

Comorbidity

Comorbidity  - containing the word 'morbid' anyone would sense that it doesn't bode well - is a word to describe weight, heart-ache, struggles.
It defines other people's ignorance.
It allows the medical profession to post another label on someones forehead.
It means, in a nut shell, that some conditions/syndromes/disorders go hand-in-hand with others.

Sunday, April 4, 2010

Specialists not so special

My god, when I look back at all the therapists, specialists, tests and hoops we jumped through it amazes me.
Early intervention with all types of therapy, suggestions from Specialist Children's Services for the creche workers, paediatricians, psychologists, psychiatrists, professors, geneticists, audiologists, opthalmologists,  blood tests til we all felt like pin cushions, autistic school, hydrotherapy, speech pathologists, allergists, EEGs, ECGs, extensive testing in a study at the Newcastle University, you name it and we were doing it.