Just about everyone has heard this lovely analogy and it's still as apt now as it was when first written.
by Emily Perl Kingsley. 
 c1987 by Emily Perl Kingsley. All rights reserved 
I am often asked to describe the experience of raising a child with a  disability - to try to help people who have not shared that unique  experience to understand it, to imagine how it would feel. It's like  this...... 
When you're going to have a baby, it's like planning a fabulous vacation  trip - to Italy. You buy a bunch of guide books and make your wonderful  plans. The Coliseum. The Michelangelo David. The gondolas in Venice.  You may learn some handy phrases in Italian. It's all very exciting. 
After months of eager anticipation, the day finally arrives. You pack  your bags and off you go. Several hours later, the plane lands. The  stewardess comes in and says, "Welcome to Holland." 
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy!  I'm supposed to be in Italy. All my life I've dreamed of going to  Italy." 
But there's been a change in the flight plan. They've landed in Holland  and there you must stay. 
The important thing is that they haven't taken you to a horrible,  disgusting, filthy place, full of pestilence, famine and disease. It's  just a different place. 
So you must go out and buy new guide books. And you must learn a whole  new language. And you will meet a whole new group of people you would  never have met. 
It's just a different place. It's slower-paced than Italy, less flashy  than Italy. But after you've been there for a while and you catch your  breath, you look around.... and you begin to notice that Holland has  windmills....and Holland has tulips. Holland even has Rembrandts. 
But everyone you know is busy coming and going from Italy... and they're  all bragging about what a wonderful time they had there. And for the  rest of your life, you will say "Yes, that's where I was supposed to go.  That's what I had planned."  
And the pain of that will never, ever, ever, ever go away... because the  loss of that dream is a very very significant loss. 
But... if you spend your life mourning the fact that you didn't get to  Italy, you may never be free to enjoy the very special, the very lovely  things ... about Holland.
*The pain for us has gone away or at least been tucked away out of our minds as we mourned what our son could not attain in his lifetime and then stopped pining for the 'what if' and set our hearts and minds on the day by day life he enjoys.
 
 
 
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